Support groups

Here are a list of resources for support groups:

1. http://www.ntsad.org/index.php/find-support/late-onset
-This support group provides materials to better understand tay-sachs disease
-Explains symptom management
-Provides research updates
-Encourages how to cope with a loved one suffering from this disease

2. http://www.cats-foundation.org/family-support/
-This website offers family contact information to get in touch with families going through tay sachs as well. 
-This is to ensure that when a new patient is diagnosed, the family is not isolated and can get the resources they need to provide the best care to their loved one.


http://www.cats-foundation.org/family-support/

3. http://www.mdjunction.com/tay-sachs-disease
-This website is a forum to allow parents and family members to ask each other questions regarding tay sachs disease. 
-It is a community where family members, friends, and patients can support one another through the internet 
-Several people have posted on this forum asking for advice regarding care, symptoms, and how to help their child succeed as much as possible 


https://www.google.com/search?q=band+back+together&source=lnms&tbm=isch&sa=X&ved=0ahUKEwiw_IfX3s3LAhVX5mMKHfU8DZQQ_AUIBygB&biw=1366&bih=667#tbm=isch&q=support&imgrc=siYdE6rsuM68FM%3A

4. http://www.bandbacktogether.com/terminal-illness-resources/
- This website provides support groups for family members of terminally ill patients.
- Having this resource to see coping mechanisms for parents is very helpful
- Since most tay sachs patients die within the first couple years, having other people experiencing the same is beneficial.